Translation. Region: Russian Federal
Source: People's Republic of China in Russian – People's Republic of China in Russian –
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Source: People's Republic of China – State Council News
Beijing, September 21 (Xinhua) — China has expanded its list of rare diseases to 207 and included nearly 100 drugs for their treatment in the list of drugs covered by health insurance. This was announced at the 2025 China Conference on Rare Diseases, which concluded on Sunday.
Due to their low prevalence, small patient numbers, and high research costs, rare diseases have received little attention in the healthcare sector. Through coordinated interagency efforts, China has accelerated the development of a system for the prevention and treatment of such diseases, making medications more accessible and affordable for patients.
In 2024, health insurance funds allocated 8.6 billion yuan (about 1.2 billion US dollars) to cover drugs for rare diseases, accounting for about 7.7 percent of the total amount of insurance payments for drugs.
In addition to expanding drug insurance coverage, China is also developing a national network for diagnosis and treatment of rare diseases, which currently includes 419 medical institutions.
In addition, the country has a rare disease reporting system covering 1.15 billion people. To date, 1.64 million cases have been registered.
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